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Consider Special Needs Planning During Disability Pride Month

June 17, 2025 //  by Diana O'Rourke, Estate Planning Attorney

special needs planningJuly marks Disability Pride Month, a time to recognize, celebrate, and advocate for the rights of individuals with disabilities.

As you reflect on inclusivity and accessibility, this is the perfect opportunity to consider how special needs planning can secure your loved one’s future while preserving access to vital resources.

Why Special Needs Planning Matters

If you have a loved one with a disability, you want to ensure they have financial stability and support throughout their lifetime.

Unfortunately, traditional estate planning methods can unintentionally disrupt their eligibility for government benefits, such as Supplemental Security Income (SSI) and Medicaid.

Special needs planning helps you safeguard their financial future without compromising their access to essential assistance. By setting up the right legal and financial structures, you can provide them with long-term support while ensuring they remain eligible for crucial aid.

Understanding Government Benefits and Asset Protection

Leaving an inheritance to your loved one may seem like a thoughtful way to provide for them, but it can create challenges. Government programs have strict asset limits, meaning a financial gift could make them ineligible for benefits.

A special needs trust (SNT) is a powerful solution. It allows you to set aside funds for their care while ensuring they can still receive financial support from programs like SSI and Medicaid.

Funds from a special needs trust can cover a wide range of needs, including housing, medical expenses, transportation, and personal care, without interfering with their government benefits.

Types of Special Needs Trusts

When it comes to special needs trusts, there are different options tailored to specific situations.

1.) First-Party Special Needs Trust

This type of trust is funded with assets owned by the individual with special needs, such as an inheritance or legal settlement. While it allows them to maintain government benefit eligibility, Medicaid will require reimbursement from the trust upon their passing.

2.) Third-Party Special Needs Trust

Funded by parents, relatives, or other loved ones, a third-party SNT ensures financial security without affecting government benefits. These trusts are commonly used in estate planning and are not subject to Medicaid reimbursement.

3.) Pooled Special Needs Trust

Managed by nonprofit organizations, pooled trusts combine funds from multiple beneficiaries while maintaining separate accounts. This option provides professional oversight and management for the trust.

Steps to Establish a Special Needs Trust

Setting up a special needs trust requires careful planning and the guidance of a licensed estate planning attorney. If you’re in Connecticut, working with a lawyer ensures compliance with state laws while tailoring the trust to meet your family’s needs.

Key steps include:

  • Choosing the right type of trust based on your loved one’s circumstances
  • Selecting a trustee to manage the funds
  • Determining how the trust will be funded (inheritance, savings, life insurance, etc.)
  • Outlining expenses that the trust will cover

Take Action During Disability Pride Month

Disability Pride Month serves as a reminder of the importance of advocacy and preparation. Taking action now ensures that your loved one has financial stability and ongoing support without facing obstacles.

Planning ahead prevents unnecessary hardship and allows your loved one to thrive with confidence. By securing their future today, you’re creating a foundation for long-term security and independence.

We Are Here to Help!

As you can see from this post, targeted solutions can be implemented to address specific circumstances. When you work with our firm, we will learn about your situation and your objectives and make recommendations so you can make fully informed decisions.

We have a Westport, CT estate planning office, and our other location is in Glastonbury. You can send us a message to request an appointment at either office, and we can be reached by phone at 860-548-1000.

  • Author
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Diana O'Rourke, Estate Planning Attorney
Diana O'Rourke, Estate Planning Attorney
Associate Attorney at Nirenstein, Horowitz & Associates, PC
In May 2023, Diana M. O’Rourke joined Nirenstein, Horowitz & Associates, P.C. as an associate attorney in the trust administration department. Diana has five years of experience practicing in the areas of estate administration, estate planning and elder law.She is admitted to practice in the State of Connecticut and is a member of the Connecticut Bar Association, where she is part of the Estate & Probate section and the Elder Law section...Read More!
Diana O'Rourke, Estate Planning Attorney
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