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How Can a Special Needs Trust Trustee Use the Funds?

April 8, 2025 //  by Diana O'Rourke, Estate Planning Attorney

special needs trustA special needs trust can make the life of a person with a disability much more comfortable, and the trustee has wide latitude with regard to the nature of the expenditures. We will provide the details here, but first, we will share an overview to provide context.

Need-Based Benefits

Clearly, people with ongoing health challenges are going to need expensive healthcare throughout their lives. Most Americans get health insurance through their employers, and many of these folks are unable to work, so that is not an option.

Medicaid is the solution, and people with disabilities who qualify for Medicaid also receive Supplemental Security Income (SSI). Once eligibility has been granted, it is not necessarily permanent. An improvement in financial status could cause a loss of benefits.

This is an issue that is front and center if you want to leave an inheritance to someone with a disability that is relying on these programs.

Special Needs Trusts

Now you can see why an advanced strategy must be implemented, and it will revolve around a special needs trust. These devices are alternately referred to as supplemental needs trusts.

The anatomy of the trust involves the grantor, the trustee, and the beneficiary. If you establish and fund the trust, you would be the grantor, and you would name a trustee to act as the administrator. Of course, the beneficiary would be the person that you want to assist.

Any adult willing to assume the role can act as the trustee from a legal perspective, but you have to consider longevity and financial management capabilities. If you do not know anyone that would fit the bill, you can use a trust company or another professional fiduciary.

It should be noted that a person with a disability that comes into money could establish a supplemental needs trust. They would not be able to act as trustee, but the other details would be the same. However, there is a reason why this arrangement should be avoided if possible.

Approved Expenditures

The trustee can use the assets in the trust to make a beneficiary more comfortable in many different ways. Generally speaking, the trustee cannot provide cash for the beneficiary to use to purchase essentials, but the guidelines give the trustee a great deal of leeway.

Even though these are need-based programs, a home is not a countable asset, so the trustee could actually purchase a home for the beneficiary. They could also provide a motor vehicle that is specially equipped to suit the needs of the individual in question.

The trustee could pay for tuition and training, computers, other types of electronic equipment, vacations, transportation, recreation, and medical, dental, and therapeutic services not covered by Medicaid. These are just a handful of the goods and services that could be provided.

Medicaid Estate Recovery

As we have touched upon, assets that are the property of a person with a disability could be used to fund a special needs trust. This would be a first-party or self-settled trust.

Medicaid is required to seek reimbursement from the estates of people that were enrolled in the program while they were living. This is called estate recovery. Assets that remain in a first-party trust after the death of the beneficiary could be attached by Medicaid.

If you establish a third-party trust with your funds for the benefit of someone else, you would name a successor trustee in the trust declaration. After the death of the original beneficiary, the successor would assume the role, and Medicaid would be out of the picture.

Schedule a Consultation Today!

As you can see from this post, there are solutions that can be implemented to address specific, targeted estate planning objectives. There is no reason to settle for an approach that does not cover all your bases correctly, but as a layperson, you would not be aware of all your options.

This is why it is important to work with an attorney from our firm to put a plan in place. We will gain an understanding of your situation and help you create a plan that is custom crafted to ideally suit your needs.

You can schedule a consultation at our Glastonbury or Westport, CT estate planning offices by calling us at 860-548-1000, and you can use our contact form if you would rather send us a message.

  • Author
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Diana O'Rourke, Estate Planning Attorney
Diana O'Rourke, Estate Planning Attorney
Associate Attorney at Nirenstein, Horowitz & Associates, PC
In May 2023, Diana M. O’Rourke joined Nirenstein, Horowitz & Associates, P.C. as an associate attorney in the trust administration department. Diana has five years of experience practicing in the areas of estate administration, estate planning and elder law.She is admitted to practice in the State of Connecticut and is a member of the Connecticut Bar Association, where she is part of the Estate & Probate section and the Elder Law section...Read More!
Diana O'Rourke, Estate Planning Attorney
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Category: Estate PlanningTag: Special Needs Planning, Medicaid, trustee discretion, SSI, special needs trust

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